What is Charcot Marie Tooth?

CMT, or Charcot Marie Tooth disease, is a progressive degenerative disease of the nerves. Caused by genetic anomolies, CMT impacts 1 in 2500 people, including me. It impacts each person differently. In general, CMT impacts the way the nerves transmit signals to muscles, leading to muscle atrophy, reduced sensation, and muscular imbalance. Efforts are underway to find a cure for CMT – by clicking on the CMTA STAR Appeal button above, you can help by contributing vital funds which will be used to support ongoing research and testing for a cure.

Welcome!

I’ve changed my perspective on limitations. I believe in pushing myself to find my limits. And then pushing those limits in order to redefine them – and in doing so, to beat my limitations.

Donna DeWick

In 2004 I received a diagnosis of CMT – a progressive degenerative nerve disease. In 2007 I received a diagnosis of Hypermobility Ehlers Danlos Syndrome. In 2009 I decided that I needed to change my perspective on living with these supposed limitations. I decided to see just how strong, fit and able I could become. So that if, someday, I were to decline, I would do so from a position of strength and with a lifetime of laughter and experiences that I would have collected along the way.

On this site write about all aspects of my life – from sport to the kitchen, from what I read in the newspapers to what I hear from my doctors. I share how I manage my health and well being, and about my approach to fitness and healthy living. You can support the efforts to find a cure for CMT. You can follow my progress as I constantly seek to redefine – and beat – my own limitations. And I hope that you can find a bit of inspiration to do the same.

2017 Goals

I cannot believe 2017 is here already – and that we are already one week in! Where did time go?! I feel like the past 18 months have been a blur. I don’t want this to be a laundry list of everything that has gone on in my personal life, so I will just leave it […]

What’s New & Good?

It’s been a while since I have posted. So I thought I would do a quick catch up, on what’s new & good in my life. From the healing hipster to health coach training, it has been a busy last three months! First, how crazy is it that it is already November? Then again, my […]

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Reality Shift, Post Hip Fracture

About two and a half weeks ago home life had a radical reality shift. My husband was out for his long run in the final build to Ironman Weymouth when he had a completely random and unexpected fall. A fall which two days later saw him being admitted to A&E with a hip fracture and facing […]