What is Charcot Marie Tooth?

CMT, or Charcot Marie Tooth disease, is a progressive degenerative disease of the nerves. Caused by genetic anomolies, CMT impacts 1 in 2500 people, including me. It impacts each person differently. In general, CMT impacts the way the nerves transmit signals to muscles, leading to muscle atrophy, reduced sensation, and muscular imbalance. Efforts are underway to find a cure for CMT – by clicking on the CMTA STAR Appeal button above, you can help by contributing vital funds which will be used to support ongoing research and testing for a cure.


I’ve changed my perspective on limitations. I believe in pushing myself to find my limits. And then pushing those limits to redefine them. In order to beat them.


In 2004 I received a diagnosis of CMT – a progressive degenerative nerve disease. In 2007 I received a diagnosis of Hypermobility Ehlers Danlos Syndrome. In 2009 I decided that I needed to change perspective on living with these supposed limitations. I decided to see just how strong, fit and able I could become. So that if, someday, I were to decline, I would do so from a position of strength and with a lifetime of laughter and experiences that I would have collected along the way.

On this site write about all aspects of my life – from sport to the kitchen, from what I read in the newspapers to what I hear from my doctors. I share how I manage my health and well being, and about my approach to fitness and healthy living. You can support the efforts to find a cure for CMT. You can follow my progress as I seek to constantly redefine – and beat – my own limitations. And I hope that you can find a bit of inspiration to do the same.

World Paratriathlon Championships: Come Alive

Participation. That was the aim of my 2015 triathlon season. To participate in local races and to lend support to the growing paratriathlon movement through my participation in smaller grass roots events. Back in April I kicked off my season with the Egg Hunt in Florida. It was early in the season, but I managed […]

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The Dart10km Swim: My Return

I don’t even know where to begin, so I think I will start at the end. On Sunday I did the Dart 10km swim. What started as a Facebook message from Heather back on a cold grey January day ended yesterday with me in complete disbelief. I SWAM 10KM. The past few months have been so rough […]

Friday Thought: On Managing Wellness

Since my last post, I’ve… …travelled to Tuscany, Croatia, Marseille, Paris, and Stavenger… …swum 40 kilometres in one week… …finished one of my dream swim races, the Defi Monte Cristo 5k challenge in Marseille… …missed one of my goal races for 2015, the Arctic One paratriathlon at Dorney Lake… AND… I’ve submitted my name in the […]