What is Charcot Marie Tooth?

CMT, or Charcot Marie Tooth disease, is a progressive degenerative disease of the nerves. Caused by genetic anomolies, CMT impacts 1 in 2500 people, including me. It impacts each person differently. In general, CMT impacts the way the nerves transmit signals to muscles, leading to muscle atrophy, reduced sensation, and muscular imbalance. Efforts are underway to find a cure for CMT – by clicking on the CMTA STAR Appeal button above, you can help by contributing vital funds which will be used to support ongoing research and testing for a cure.


I’ve changed my perspective on limitations. I believe in pushing myself to find my limits. And then pushing those limits to redefine them. In order to beat them.


In 2004 I received a diagnosis of CMT – a progressive degenerative nerve disease. In 2007 I received a diagnosis of Hypermobility Ehlers Danlos Syndrome. In 2009 I decided that I needed to change perspective on living with these supposed limitations. I decided to see just how strong, fit and able I could become. So that if, someday, I were to decline, I would do so from a position of strength and with a lifetime of laughter and experiences that I would have collected along the way.

On this site write about all aspects of my life – from sport to the kitchen, from what I read in the newspapers to what I hear from my doctors. I share how I manage my health and well being, and about my approach to fitness and healthy living. You can support the efforts to find a cure for CMT. You can follow my progress as I seek to constantly redefine – and beat – my own limitations. And I hope that you can find a bit of inspiration to do the same.

Goodbye 44, Hello 45

I turned 45 last week. Goodbye 44, Hello 45! Maybe if I say that enough it will sink in. I just celebrated my 45th birthday. 4-5. To be honest with you, I have been more than ready to start my new year. Don’t get me wrong. 44 was awesome and included many highpoints. Like celebrating […]

A Bit of Thumper Wisdom

In the past few weeks I have been astounded by the peoples of the internet. They all need to go back to Disney School to take heed of some Thumper Basics. Why is it that when some folks aren’t forced to have an “in person” conversation but instead can sit behind a keyboard and screen, all common courtesies […]

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Paratriathlon: Giving Back

I have written before about my core values – my belief system that my parents helped to shape… If you can do something, do it. If you can give something, give it. If you love something, figure out a way to give back to it. It is no surprise to anyone who reads this blog […]

Thinking Makes It So

Or maybe we make it that way. I’ve been thinking about this a lot – do I overcomplicate my life? Do my thoughts make things more – or less – complicated than they need to be? Since my dad died in July I have found myself in the middle of some unpleasant situations. Some related […]