What is Charcot Marie Tooth?

CMT, or Charcot Marie Tooth disease, is a progressive degenerative disease of the nerves. Caused by genetic anomolies, CMT impacts 1 in 2500 people, including me. It impacts each person differently. In general, CMT impacts the way the nerves transmit signals to muscles, leading to muscle atrophy, reduced sensation, and muscular imbalance. Efforts are underway to find a cure for CMT – by clicking on the CMTA STAR Appeal button above, you can help by contributing vital funds which will be used to support ongoing research and testing for a cure.

Hi! I’m Donna

I’ve changed my perspective on limitations. I prefer to live on the edge – the edge of my limits. I find my edge. I feel it for a while. And then I take a leap.

In 2004 I received a diagnosis of CMT – a progressive degenerative nerve disease. In 2007 I received a diagnosis of Ehlers Danlos Syndrome Hypermobility. In 2009 I decided that I needed to change my point of view about living with limitations. I decided to see just how strong, fit and able I could become. So that if, someday, I were to decline, I would do so from a position of strength and with a lifetime of laughter and experiences that I would have collected along the way.

On this site write about all aspects of my life – from sport to the kitchen, from what I read in the newspapers to what I hear from my doctors. I share how I manage my health and well being, and about my approach to fitness and healthy living. You can support the efforts to find a cure for CMT. You can follow my progress as I seek to constantly redefine – and beat – my own limitations. And I hope that you can find a bit of inspiration to do the same.

Decisions: My 2015 Triathlon Season

I’ve let it be known that what I would really like to do is to do a race in Japan. Specifically, ITU World Paratriathlon Yokohama. But what I haven’t put out there (much anyway) is how setting myself a big goal like this has seemed like setting myself up for failure. It is not the […]

Welcome 2015

Since 2013 I have set a “theme word” for myself to carry through the new year. In 2013 it was “intently”. In 2014 it was “rooted”. This year, in 2015, my word is “welcome”. Photo taken of sunrise on 31 December 2014 along the Suffolk coast, in England The word appeared to me as I […]

The Paratriathlete Diaries: The London League

This post is one of a series I call “The Paratriathlete Diaries” – in the series I hope to take a regular look at the random things that happen in my life as an athlete with challenges.  Any ideas, questions, or suggestions throw them my way. I would like to use this feature as a […]

Offseason 2014

I guess it is not so unusual in the world of triathlon to see blog posts about how the offseason is going for people. Last year at around this time I decided to take a break from posting my offseason training. My decision was precipitated by a sequence of sickness. A string of colds that […]