What is Charcot Marie Tooth?

CMT, or Charcot Marie Tooth disease, is a progressive degenerative disease of the nerves. Caused by genetic anomolies, CMT impacts 1 in 2500 people, including me. It impacts each person differently. In general, CMT impacts the way the nerves transmit signals to muscles, leading to muscle atrophy, reduced sensation, and muscular imbalance. Efforts are underway to find a cure for CMT – by clicking on the CMTA STAR Appeal button above, you can help by contributing vital funds which will be used to support ongoing research and testing for a cure.

Welcome!

I’ve changed my perspective on limitations. I believe in pushing myself to find my limits. And then pushing those limits to redefine them. In order to beat them.

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In 2004 I received a diagnosis of CMT – a progressive degenerative nerve disease. In 2007 I received a diagnosis of Hypermobility Ehlers Danlos Syndrome. In 2009 I decided that I needed to change perspective on living with these supposed limitations. I decided to see just how strong, fit and able I could become. So that if, someday, I were to decline, I would do so from a position of strength and with a lifetime of laughter and experiences that I would have collected along the way.

On this site write about all aspects of my life – from sport to the kitchen, from what I read in the newspapers to what I hear from my doctors. I share how I manage my health and well being, and about my approach to fitness and healthy living. You can support the efforts to find a cure for CMT. You can follow my progress as I seek to constantly redefine – and beat – my own limitations. And I hope that you can find a bit of inspiration to do the same.

Shoulder Injury, Shoulder Rehab

When my dad died in July I went to his house to help with the clear out. This was a big deal in many ways – not least of which because I was finally allowed to go into and go through his sacred place: his garage full of fishing supplies. Packed to the brim, his […]

2016: New Year, New Word

The French say that you have all of January to welcome in a new year and to give your new year wishes to everyone. Seeing as I never did a 2015 round up post, it is almost mid January, and I work for a French company, I hereby declare myself French for the purposes of […]

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Sportsmanship: Don’t Cross the Line

I’ve been doing some thinking. About sportsmanship. And particularly about behaviours that I find unacceptable, those that “cross the line”. Here’s what’s not cool in my book: It is not cool to make fun of people who are slow. It is not cool to make fun of people who have challenges – be it intellectual […]

Never Afraid

This past weekend we went to Paris for our annual pre-Christmas getaway. We go every year, for a weekend of together time before the holiday season arrives full force. This year was a little different. A lot of people asked if we would cancel our weekend as a result of the November 13th attacks. My […]