Thanksgiving Thoughts…

Thanksgiving is one of my favourite holidays – it is the time of the year that I miss being in the US the most.  To me, it represents the best of American traditions – good food, time spent with family, chilling in front of the football, crisp weather…  I always describe it to non-Americans as […]

Making Strides: An Interview with Sue (Think Pink)

As many of you know, I am completely passionate about charity fundraising.  I do it.  And I am constantly seeking out people who also fundraise, to try to learn a little bit of their secrets, their magic. Via Twitter last year I was introduced to Sue Harmon.  Sue is an amazing woman – two time […]

The Twitter #swim cap – raising awareness of CMT

As you may know, I took up triathlon as a way to stay physically fit, and strong, following what I thought was deterioration in strength caused by Charcot Marie Tooth disease.  I was diagnosed with CMT in 2004, with this confirmed genetically in 2007.  Having CMT is something that was suspected for my whole life […]

CMT: Train to Tri, for the STAR initiative

As you may know, this year I am focusing my fundraising in support of the CMT Association STAR initiative .  CMT is a progressive degenerative neuromuscular disease.  The CMT Association in the US is funding and supporting the search for a cure for CMT, primarily Type1A (which I have) which impacts 1 in 5000 people.  […]

CMT: An Interview with Courtney

As you may know, this year I am focusing my fundraising in support of the CMT Association STAR initiative .  CMT is a progressive degenerative neuromuscular disease.  The CMT Association in the US is funding and supporting the search for a cure for (primarily) CMT1A, which impacts 1 in 5000 people, and along the way […]

You know you want one…

About a month ago on the last Friday in April, a group of us met for a morning swim.  London Fields Lido at 7am.  A heated outdoor 50m pool in the east end of London. One problem…  We had never met before.  This was a Twitter #swim tweetup.  How would we recognise each other? The […]