Thanksgiving is one of my favourite holidays – it is the time of the year that I miss being in the US the most. To me, it represents the best of American traditions – good food, time spent with family, chilling in front of the football, crisp weather… I always describe it to non-Americans as […]
As you may have guessed, I reached a milestone birthday last week Wednesday. I turned 40. When asked what I wanted for my birthday, I was a bit stumped. In all honestly I am much better at giving presents than receiving. So for my 40th birthday I decided to celebrate the occassion by giving something […]
As many of you know, I am completely passionate about charity fundraising. I do it. And I am constantly seeking out people who also fundraise, to try to learn a little bit of their secrets, their magic. Via Twitter last year I was introduced to Sue Harmon. Sue is an amazing woman – two time […]
One of the first people I started following on Twitter was Ashley Kumlien. Ashley is a runner and a personal trainer from Wisconsin. And her mom has MS. Ashley and her mom, Jill Most people who read my blog posts know that I have CMT, a neuromuscular disease of the nerves, and my particular type […]
As you may know, I took up triathlon as a way to stay physically fit, and strong, following what I thought was deterioration in strength caused by Charcot Marie Tooth disease. I was diagnosed with CMT in 2004, with this confirmed genetically in 2007. Having CMT is something that was suspected for my whole life […]
As you may know, this year I am focusing my fundraising in support of the CMT Association STAR initiative . CMT is a progressive degenerative neuromuscular disease. The CMT Association in the US is funding and supporting the search for a cure for CMT, primarily Type1A (which I have) which impacts 1 in 5000 people. […]
As you may know, this year I am focusing my fundraising in support of the CMT Association STAR initiative . CMT is a progressive degenerative neuromuscular disease. The CMT Association in the US is funding and supporting the search for a cure for (primarily) CMT1A, which impacts 1 in 5000 people, and along the way […]
As many of you know, this year I have re-focused my fundraising and am dedicating my training, racing and efforts to the Charcot Marie Tooth Association’s STAR initiative. STAR is funding targetted cell and gene specific research into drugs which may be a cure – or treatment – for Charcot Marie Tooth disease type 1A. […]
About a month ago on the last Friday in April, a group of us met for a morning swim. London Fields Lido at 7am. A heated outdoor 50m pool in the east end of London. One problem… We had never met before. This was a Twitter #swim tweetup. How would we recognise each other? The […]
What has happened to time? One second it was the last Monday in April, now I see it is already the first Wednesday in May. I think the way time slipped by over the last week was caused by a few things. First, we spent the long weekend in Suffolk – and did not have […]